When I first examined the consent package for the Meteoric – HF research study, I was intrigued to learn that I would have the option to undergo two subject interviews. The consent package said:
In several blog posts, I have talked about how my church encourages members to pick from a list of Bible verses and write devotionals during the season of Advent. I discussed two devotionals I wrote this year – using verses picked at random and just writing the text and not editing it a gazillion times. It was a very spontaneous and fruitful process.
Did I learn anything in this process? The answer is yes, but the learning did not just come from crafting the devotional. I had an epiphany after I submitted the devotionals to my minister. It continues to inform my life as I move forward with heart failure.
When I saw my heart failure doctor at my appointment on October 30, he indicated to me that the future for heart failure treatments is promising. There are some new drugs in the development and the investigation stage. Some of the drugs could make the patient feel better, others could improve the heart’s function.
He mentioned that the hospital that his program resides in currently has a clinical study for one of these drugs, and my name had been mentioned as someone who might be interested in that study. The drug under investigation is known as omecamtiv mecarbil, and the purpose of the drug would be to improve the heart’s pumping ability. My reaction was – where do I sign up?!?
You may recall that for a few years, I have used the occasion of the New Year to reflect on what I had accomplished in the outgoing year. I started this habit based on the advice of a former therapist. She also recommended that I develop a list of goals that I wanted to work on in 2020, and I adopted that suggestion as well.
I have to admit that the first year, I was not certain whether I wanted to adopt this as a tradition going forward. I was not one to make “New Year’s Resolutions” each year. I was such a consummate planner that I did not see the need to make a special effort for what I would do in the New Year. I would just continue to always plan my life out as I always had.
In previous posts, I have talked about the importance of a routine. If you have read those posts, you may wonder why I am asking the question about whether a routine can have a downside, or can even undermine one’s health.
I do not mean to send mixed messages. Certainly, if I didn’t have a routine for taking my medications, following dietary and fluid restrictions, keeping up with a daily exercise schedule, and making and keeping medical appointments, my heart health would likely be in really bad shape. I always get kudos from my health care providers for following instructions, and in large part, my success is due to my discipline in maintaining a routine.
Every year, my family prepares Christmas list so we don’t waste our time in stores trying to figure out the perfect gift. So this year, my family knew I was interested in gifts like: charms for a charm bracelet; a cross necklace; exercise clothes; cotton sweaters; a calendar; etc. There would be some surprise because there would be discretion in the colors and designs of the requested items. But at least I led them to the ballpark where they would have a good chance of scoring a home run.
But it dawned on me that while there were a lot of beautiful, distinctive things on my list – things that were colorful, or tributes to my faith or my fashion sense, I really did not have anything for my heart. Sure maybe the exercise clothes could be in the heart category because I exercise to strengthen my heart, but my sense is this is more in line with my fashion sense.
Lately, there have been episodes in my life where it seems like God is giving me a cue on either the outlook or direction I should take in my life. No, I haven’t heard the voice of God speaking to me, nor have I seen any eye-popping events like angels appearing before me with arrows pointing me toward a particular path.
It’s just a series of events that leads me to a realization that shapes how I should organize my life, new goals I should implement, or how to deal with a problem. Some people would scoff and consider these to be coincidental events – kind of like move along folks, no influence of God to see here.
As a chronic congestive heart failure patient, it seems to me that I am taking a lot of medication. My nurses assure me that there are other patients who take even more, so I guess I should be grateful that I do not have even additional pills to swallow
have become familiar with a number of drugs in the last six years. I have also reviewed a good variety of product packages, product information documents and patient inserts. So I have some suggestions to perhaps help the pharmaceutical industry develop additional drugs, revisit medication names, and add more clarity to the patient information we need to review before we put a pill into our bodies.
October and November are autumn months, and autumn has always been my most favorite time of the year. But even though I love the change of colors, and putting on sweaters, wool outfits and even gloves and hats, the season holds some challenging moments.
Why? Well my Dad’s birthday is in October and my Mom’s birthday is in November. And they both passed away in the autumn. So, I have bittersweet memories when autumn rolls around. My Mom passed away last November, and my Dad passed away during the last week of September in 1996. This means that my memories of my Mom are more recent and thus, more vivid. But I have great memories of both that are helping me manage and I hope at some point perhaps even stare down heart failure.
I had a heart failure doctor appointment at the end of October. The doctor talked to me about a trial for the investigational drug known as Omecantiv Mecarbil. I know – this is a mouthful. As this drug is just being studied, it does not yet have a name that easily rolls of your tongue.
I found a description of this investigational drug on the Cytokinetics website. Cytokinetics is a biopharmaceutical company. It is collaborating with Amgen to develop this new drug, along with “funding and strategic support from Servier.” Not sure what that part means but it sounds impressive, and as a heart failure patient, I’m glad when companies collaborate, fund and support new heart failure drug development.
Melanie discovered that she had heart failure in 2013. Since that time, she has been learning how to live with the condition, and how to achieve balance and personal growth.